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And Now, the Final Diagnosis: Yes, It's Staph! Toxic Shock Syndrome Options · View
Shaz
Posted: Saturday, June 19, 2010 7:50:06 PM
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Location: Bar, Restaurant at the End of the Universe
I've seen people on the rosacea boards complain that IPL gave them orange-peel skin texture, red or brown discolorations, etc. also. Even if I didn't get fat loss, or *horrors* giant sores that won't heal, I don't want the texture of my skin to change to the worse, ya know? Yes, lots of people have no problem, but many more are coming out telling about negative experiences. Not worth the risk. You can bet there'll be a conspiracy of silence both from the doctors and the FDA for some time to come, though. Greed. Plain and simple.

DC, I'm in awe of you for putting so much time and effort into starting a grass-roots campaign to get the word out.

***************

DCNGA wrote:
Thank you, Shaz. I'm glad you listened to your inner voice. I have no idea why it happens or why it seems to be a 'selective' problem but it is real. I know it does not happen to everyone, it couldn't possibly and so many doctors continuing with these procedures. But, the stories are so shockingly similar and all of these stories have the same thing in common: cosmetic medical device procedure prior to symptoms appearing. It's not a coincidence, I'm sure of that. It's some sort of DNA or radiation damage is all I can surmise but I'm not a doctor, scientist or researcher so I'll likely never know. I think it's going to take a doctor having someone he/she loves who's affected by these devices to finally find out what's causing it all.

The FDA is useless, this much I have accepted.


Pay no attention to Caesar. Caesar doesn’t have the slightest idea what’s really going on. Kurt Vonnegut

Sarah W
Posted: Saturday, June 19, 2010 7:58:36 PM
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Yes thank you DC. It is a wonderful service you are doing. I have had about 10 IPL treatments over the years. I was one of the lucky ones I am guessing but had I known the information you are giving, I would never have taken the risk.
DCNGA
Posted: Saturday, June 19, 2010 8:10:22 PM
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Location: reading a new medical device victim's horror story
Thanks, ladies. It's humbling to read these ladies/gents stories. I just created a new forum/board. Old one was crashing and burning, finally got the new one up and working. Whew.

Sorry for hijacking your thread a bit, Bug.

The greatest way to live with honor in this world is to be what we pretend to be. ~Socrates~ (I pretend to be a cat with a lime carved as a helmet on my head)



Bugjune
Posted: Saturday, June 19, 2010 8:48:40 PM
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Cool! I just added that URL link to my post over at MMH. And bookmarked it for my own future use, too! Thanks DCNGA!


DCNGA wrote:


Tell her to google "IPL and Laser Damage" she will find plenty, including my blog. Both URLs are in my posts here if you click on the "www" or "blog".


I Bug U
MissJ
Posted: Saturday, June 19, 2010 8:58:50 PM
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Points: 33,749
There is already a book by that name. I would feel out a few lawyers though to see if they could draft up a letter aimed at his reimbursing you or, ya, you could ask him yourself.


Bugjune wrote:
Right again. I'd just be stating the facts. Altho wasn't one of us (watchthemoon?) being harassed by her doc after she'd posted unfavorable comments about him at MMH? It's as if MMH moderators are in cahoots with these surgeons.

And believe me, if I was sued by him, I wouldn't take it lying down.

My GP says "Let it go. You'll get nothing out of him." And he is wise, and perhaps knows the stress of pursuing all what's due to me may not be worth it.

When bad things happen to good people. Title of a best-seller.


==========================================


Concord MA celebrating freedom from British rule .


Bugjune
Posted: Saturday, June 19, 2010 9:01:10 PM
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Location: The leaf I am sitting on
Zebra, Thanks for your input here! My procedure, done on a Friday, initially had a Tuesday follow-up, and come to think of it, isn't that DAYS later from a second degree burn? I had 4 days for the infection to fester, and by Tues my fever was 102.7F. But I felt like crap on Monday, so I called and BULLDOZED my way in to see the doc anyway. Got the vinegar/water facial treatment and was sent back to my hotel room - only then did the $hit hit the fan, and my infection turned toxic.

And yes, oddly enough there was NO (as in zero, zip, nada) instruction in our post-treatment sheet about what to look for (high fever, drop in blood pressure, vomiting, diarrhea, LIVID skin!) - like obvious signs of staph infection. That seem absurdly irresponsible - especially given that this doc's standard of practice was *NOT* to administer any antibiotic at all! If I had not been dragged to his office days into my fever, I would NEVER (NOT EVER) have even received an antibiotic.

The nurse is who I credit with saving my life. When I returned to the doc's office on Thurs, she could see I had the eye infection, blood pressure had dropped to 110/60; fever near 104F; vivid purple legs; tongue coated with something white, mouth sores, achy lower back, yeah, she KNEW. All they had to do was put me in a wheelchair and roll me 100 yards, and I would've been IN the hospital next door. But no, they kept it quiet, gave me the IV right there in a straightback chair - was told I couldn't bend my arm for 4.5 hours. Forget about lying down or being comfy. It was the longest day of my life as I stared at the ceiling ... my huge swollen feet ... the treatment room I'd sat in on many an occasion getting Juvey and Botox ... still clueless as to how dire my condition was.

Even after that IV episode, my MixTo doc NEVER said, "GET TO A DOCTOR ASAP! I fear for your life!" Nope. Just kept giving me wrong diagnoses one after the other, like a wild goose chase. No crisis management plan whatsoever. That's why I am not returning to him. He has lost all credibility with me, and faith in him.


============================================
zebra wrote:
Bugjune, I am sorry this happened to you, and I am glad you are sharing this. It may very well prevent it from happening to others.

I had a couple questions: You were discharged from the procedure to a hotel, with no F/U appointment, or instructions on what to look for, like an elevated temp? Burns are very susceptible to infection, and S. Aureus is everywhere. If you were sent out on your own with no follow up, or your calls were ignored, or you were given medical advice by a receptionist, that is a standard of medical care violated right there.

And it sounds like you were administered an IV (cephalosporin) in the office, so there was some 'suspicion' of serious infection, of several days duration. Given the large area of infection and time elapsed, your systemic problems should have been suspected. You are not expected to know this! Don't let anyone make you feel guilty or responsible.

You weren't referred because he didn't want this known, and thought that he could 'handle' it. Yes, surgeons should be able to deal with routine post surgical infections, but they should also know when they are over their head. This guy has a serious god complex. A lot of surgeons develop this. My dad used to say "If you ask any surgeon to list the World's Three Greatest Surgeons, he will be hard pressed to come up with the other two names."

Good luck.


I Bug U
MissJ
Posted: Saturday, June 19, 2010 9:01:32 PM
Rank: Administration
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Joined: 5/14/2008
Posts: 13,347
Points: 33,749
I agree with them and as you know my ideology is very receptive to railing about the laser industry. 'Together we can raise the bar' is my motto.



DCNGA wrote:
Thanks, ladies. It's humbling to read these ladies/gents stories. I just created a new forum/board. Old one was crashing and burning, finally got the new one up and working. Whew.

Sorry for hijacking your thread a bit, Bug.


Concord MA celebrating freedom from British rule .


MissJ
Posted: Saturday, June 19, 2010 9:07:13 PM
Rank: Administration
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Posts: 13,347
Points: 33,749
That doc is getting a BIG BLACK MARK on my private insider 'beware' list. If I ever get a client who's 'thinking about' using him, she/he will get the lowdown on that doc.





Bugjune wrote:
Zebra, Thanks for your input here! And yes, oddly enough there was NO (as in zero, zip, nada) instruction in our post-treatment sheet about what to look for (high fever, drop in blood pressure, vomiting, diarrhea, LIVID skin!) - like obvious signs of staph infection. That seem absurdly irresponsible - especially given that this doc's standard of practice was *NOT* to administer any antibiotic at all! If I had not been dragged to his office days into my fever, I would NEVER (NOT EVER) have even received an antibiotic.

The nurse is who I credit with saving my life. She could see I had the eye infection, blood pressure had dropped to 110/60; fever near 104F; vivid purple legs; tongue coated with something white, mouth sores, achy lower back, yeah, she KNEW. All they had to do was put me in a wheelchair and roll me 100 yards, and I would've been IN the hospital next door. But no, they kept it quiet, gave me the IV right there in a straightback chair - was told I couldn't bend my arm for 4.5 hours. Forget about lying down or being comfy. It was the longest day of my life as I stared at the ceiling ... my huge swollen feet ... the treatment room I'd sat in on many an occasion getting Juvey and Botox ... still clueless as to how dire my condition was.

Even after that IV episode, my MixTo doc NEVER said, "GET TO A DOCTOR ASAP! I fear for your life!" Nope. Just kept giving me wrong diagnoses one after the other, like a wild goose chase. No crisis management plan whatsoever. That's why I am not returning to him. He has lost all credibility with me, and faith in him.


============================================


Concord MA celebrating freedom from British rule .


MissJ
Posted: Saturday, June 19, 2010 9:14:21 PM
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Joined: 5/14/2008
Posts: 13,347
Points: 33,749
You can post your photos on MMH and write you are UNHAPPY with the procedure. Who said you could not share your photos? Its the people who say stuff who don't post photos that are more likely to be zapped.


Bugjune wrote:
Oh boy! Now I got this to look forward to - censorship. And like others, I am just stating the FACTS. Why can't I share my pictures so others know what they're getting in for? That should not be a crime, cuz believe me NO MixTo brochure or doc's website is going to show the kind of outcome like I had. And I would bet I'm not the only one in the whole world to have these complications.


==========================================


Concord MA celebrating freedom from British rule .


MissJ
Posted: Saturday, June 19, 2010 9:16:09 PM
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Put in your key words: Lasers and COMPLAINTS.


DCNGA wrote:
Just had someone join the support board (have a new board now, btw) who said that she did a LOT of research on IPL and never found one bad thing, but she was not searching on the right terms. If you just put in "IPL" or "Intense Pulsed Light" in a search, all that comes up is the 'good' stuff. They have to search on IPL damage or IPL fat loss, but then they would have to know that it caused damage or fat loss to search on it, a catch-22.

Our new board is not coming up in google yet but the old one is (IPL and Laser Damage Support). I also started a FB group hoping to get some exposure for this. CNN showed interest, Erin Brockovich showed interest, news reporters and TV stations but they all end up not fighting the machine that is the device makers. These are FDA approved devices, case closed. It means someone taking on the FDA over this and no one in our group is equipped to do it nor am I.

Tell her to google "IPL and Laser Damage" she will find plenty, including my blog. Both URLs are in my posts here if you click on the "www" or "blog". I get around 5 emails a week or comments on the blog about a new 'victim' or "I never knew before I had IPL that this could happen" or "my doctor never told me any of this." When they go to their doctors the doctors say "I've never heard of this". I've devoted almost 2 years to this as have many on the board who've stuck with it, trying to get the word out. Maybe one day, but doctors don't believe or listen. Think of how dismissive your doctor was in your last email and magnify that by a 1000 and that how is all of these ladies are treated. It is frustrating and hurtful to everyone current, past, and future. Some are told they are too 'emotional' or 'seeing things'. Dr. T in FL recently saw one of the ladies for a consult for fat grafting. He said she was so 'distorted' he did not know if he could fix it all. Can you imagine?

Please warn people. I know you had a good experience with IPL but many have not AND they never knew it was even a possibility. I used to tell people to just read the stories on the support board. If they bothered to read, they often never went through with the IPL. At least making them aware of the issues gave them a chance to make an informed decision.


Concord MA celebrating freedom from British rule .


Bugjune
Posted: Saturday, June 19, 2010 9:16:16 PM
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I am gonna. You betcha. I will wait till my co-payment bills come in from the GP doc and derm doc visits, plus the lab culture bill I have. Geez, the frickin' nerve of him charging that to ME! This will add up to several hundred ... and he'd be getting off on the cheap if I end it there. I am not out to gouge. I'll post my photos and story and let folks decide for themselves whether or not to give him the business, but I'd like to get my due, is all I'm asking.


======================================
MissJ wrote:
... I would feel out a few lawyers though to see if they could draft up a letter aimed at his reimbursing you or, ya, you could ask him yourself.




I Bug U
DCNGA
Posted: Sunday, June 20, 2010 7:17:19 AM
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Joined: 9/18/2008
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Location: reading a new medical device victim's horror story
Do you mind if I tell your story on the support board? I'll post a link to your MMH post so others can read in your own words.

That doctor is a waste and is disgusting.

The greatest way to live with honor in this world is to be what we pretend to be. ~Socrates~ (I pretend to be a cat with a lime carved as a helmet on my head)



MissJ
Posted: Sunday, June 20, 2010 10:46:53 PM
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Posts: 13,347
Points: 33,749
Link to MMH PHOTOS and most of her posts are HERE.


DCNGA wrote:
Do you mind if I tell your story on the support board? I'll post a link to your MMH post so others can read in your own words.

That doctor is a waste and is disgusting.


Concord MA celebrating freedom from British rule .


Bugjune
Posted: Monday, June 21, 2010 11:10:39 AM
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Joined: 6/29/2009
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By all means: go for it! Here is the link to my thread at MMH:

http://messageboards.makemeheal.com/laser-treatments/day-two-post-mixto-laser-long-t135694.html

Within that thread is the link to my album and pictures.

Yup. Read it and weep.


=====================================================================
DCNGA wrote:
Do you mind if I tell your story on the support board? I'll post a link to your MMH post so others can read in your own words.

That doctor is a waste and is disgusting.


I Bug U
Amber
Posted: Tuesday, June 22, 2010 11:06:15 AM
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Joined: 7/3/2008
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Location: UK
Hey Bug,

How are you doing now? You mentioned a few days ago you still had new blisters coming up?
Bugjune
Posted: Tuesday, June 22, 2010 12:13:28 PM
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Location: The leaf I am sitting on
Amber, you are so sweet to ask! Would you believe the lip/mouth blisters are GONE! Yes, I can open my mouth wide again, and my lips are no longer uniformly ruby red with that raw skin. That is the GOOD NEWS. Plus, I've been experimenting with arnica gel right on the red, new skin under my eyes. And in just 2+ days, that is fading more noticeably than when I put aloe gel on. (I'd asked a derm doc about getting Biafine cream, which is used to treat extreme inflammation on burn victims, but he said he didn't have any...)

BUT. The bug is itchy and scratchy. I have broken out in a weird, lumpy rash all over my back, thighs, abs, and into my scalp on the back of my head. It started 3 days ago on the lower back. I've been self-treating with cetirizine (Zyrtec) and OTC cortisone to no avail. Each day, it creeps forward, more and more. So this afternoon, I am returning to the GP doc. I will buy a chair in that waiting room and put a plaque on it, "In honor of BUG, who sat here weekly till God-knows-when".

Yes, I am tired of chasing these oddities down and hammering them. I only have so much energy for positive visualization ... and that was spent concentrating on my LIPS.

I'll keep you posted in case my rash turns out to be .... CHICKEN POX? SHINGLES? AUTO-IMMUNE? ALLERGY? STRESS?

=============================
Amber wrote:
Hey Bug,

How are you doing now? You mentioned a few days ago you still had new blisters coming up?


I Bug U
Shaz
Posted: Tuesday, June 22, 2010 4:18:41 PM
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Location: Bar, Restaurant at the End of the Universe
Aww, Bug. Dang, this needs to all be OVER and DONE WITH. I know you'll let us know what the new rash is about. GRRRRR. *sticking pins in a voodoo doll that looks like Bug's doctor*

Pay no attention to Caesar. Caesar doesn’t have the slightest idea what’s really going on. Kurt Vonnegut

m130
Posted: Tuesday, June 22, 2010 5:59:30 PM
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Geez, as if you haven't been though ENOUGH at this point!
Bugjune
Posted: Tuesday, June 22, 2010 7:01:50 PM
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Location: The leaf I am sitting on
Well I got the diagnosis! My rash is tied to the whole staph infection scenario. Even now, one month after the staph was treated with Keflex, my body doth protest!

I am my own worst enemy. I put self-tanner on - oh, let's see - FOUR days ago. It took just 24 hours for that lotion to erupt into a rash on my lower back. Then, the donkey put it on AGAIN! And this time, I got spooked when the rash worsened. So I didn't shower the self-tanner off. I just kept putting OTC cortisone on it.

My scalp rash is a similar situation: after weeks of losing hair, post-antibiotic, I went back to using my scalp nourisher, oh, let's see - FOUR days ago. Rash erupted on my scalp on the back of the head same day as on my back.

My doc is ready to tie my hands behind my back and give me a lobotomy so I do NOTHING to my skin for several weeks. The way he explains it, my body is going to be SUPER sensitive to any kind of foreign substance for the next few months. He brought up a good point: it's not just WHAT you put on the body, it's HOW LONG it remains on before being washed off or removed.

So, less is more. I'm to only put Cetaphil or Eucerin lotion on my body, along with OTC cortisone as needed. If my rash isn't gone in a week, I'm to go back to the good doc.

Voodoo doll. Where did I put that ugly little man. I'm going to take a red pen and cover it with little itchy red dots. Especially in the groin. >:-(

I Bug U
Shaz
Posted: Tuesday, June 22, 2010 8:32:52 PM
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Location: Bar, Restaurant at the End of the Universe
LOL! Yeah, let's concentrate our pins on the groin area for a while...since your doc is a real PR*CK, let's hit him where he lives. ;-)

OK..let your poor skin settle down and be a GOOD BUG. Self tanner makes my face red and really irritates it right now (haven't tried it in a few months though). I'm using Cetaphil Gentle Cleanser and it does a good job without irritating. Poor skin!! Give it a little time and gentle TLC...it's been rode hard and put up wet lately! Hugs and feel better - hang in there...Shaz

Pay no attention to Caesar. Caesar doesn’t have the slightest idea what’s really going on. Kurt Vonnegut

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